Readers here may be familiar with important changes to Medicaid law and regulations that resulted from the advocacy efforts of an Iowa family to pioneer what became known as the "Katie Beckett Waivers" in the early 1980's. This initial action set the direction for certain services purchased under Medicaid, otherwise only available in institutional settings, to be obtained at home for children with disabilities. Other related changes would eventually follow, including the Americans with Disabilities Act.
Katie Beckett passed away last week at the same hospital where her journey began, 34 years ago. Among those celebrating Katie's life and her family's advocacy is United States Senator Tom Harkin. What follows is the full text of Senator Harkin's comments, and links to articles at the New York Times and National Public Radio for those who wish to learn more.
Katie's story deserves to be shared and her life celebrated widely, especially in this climate of fiscal uncertainty. Whether you knew her, or not, Katie Beckett touched all our lives.
Read More