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This comprehensive report from the New York State Independent Living Council (NYSILC) contains valuable information that may be eye-opening for you if you live in New York State. Elsewhere, this might also suggest many interesting questions about how your state population compares. Some highlights are listed below, and many more interesting details are available in the full report, available for download from the links below.

2012 NYSILC Needs Assessment Report

The New York State Independent Living Council, Inc. (NYSILC) Needs Assessment Committee (NAC), facilitated by consultant Alan Krieger of Krieger Solutions, spent six months compiling the data into the following needs assessment report to help identify needs important to New Yorkers with disabilities and the Statewide Independent Living network. It will help guide input and need for the formulation of the next three-year Statewide Plan for Independent Living (SPIL) for 2014-2016.

Word version:

PDF version:

For instance, did you know…

• There are 928,961 civilian veterans age 18 or older living in the community in New York State, and 232,805 (25.1%) of these individuals have a disability - a high incidence of disability compared to the general population.

• The poverty rate for New Yorkers with disabilities ages 18 to 64 living in the community is 28.6%, which is more than twice that of persons in our state without disabilities (12.3%).

• The employment rate for a New Yorker with a disability (ages 18-64) is 31.2% compared to 72% for a person without a disability resulting in a gap of 40.8 percentage points.

• Among civilians age 16 or older during the last 12 months, New Yorkers with disabilities earned $10,903 less on average compared to a person without a disability ($21,581 versus $32,484).

• For students with disabilities ages 14-21 during the last 12 months, it was reported that they left New York State schools for the following reasons: 52% (15,937) graduated with diplomas, 21% (6,277) received certificates, 26% (7,788) dropped out, and 1% (390) aged out or died.

• Based on the institutionalized settings identified by the NAC, and the information received mostly by FOIA, the State institutionalized population was identified at 220,277.

For information specific to the needs of individuals with disabilities and the network, review the report.


Brad Williams - Executive Director NYSILC

For more information about this needs assessment, please contact:

Brad Williams, Executive Director:
Tel: 518 427-1060, Voice and TDD; Toll Free 1 (877) 397-4126
Email: bradw (at)
Fax: 518 427-1139

or send regular mail to:

New York State Independent Living Council, Inc.
111 Washington Avenue, Suite 101
Albany, NY 12210

Originally posted to WakeUpNeo on Sun Dec 02, 2012 at 04:36 PM PST.

Also republished by KosAbility, DKos Military Veterans, and IGTNT Advisory Group.


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Comment Preferences

  •  This shocks the hell out of me (3+ / 0-)
    Recommended by:
    OLinda, WakeUpNeo, corvaire
    the State institutionalized population was identified at 220,277
    Unless that figure includes prison inmates, I'd like to know who those people are, where they are, and why they're institutionalized.

    Republished to KosAbility and DKos Military Veterans.

    "Do your little bit of good where you are; it is those little bits of good put together that overwhelm the world." ~ Desmond Tutu

    by KelleyRN2 on Sun Dec 02, 2012 at 05:06:01 PM PST

    •  Seems like a very large number, doesn't it? (1+ / 0-)
      Recommended by:

      And there is considerable discussion among tables and narrative in the report that describe the derivation of that number, county by county.

    •  Thank you for republishing! n/t (1+ / 0-)
      Recommended by:
    •  State Institutionalized Population (2+ / 0-)
      Recommended by:
      KelleyRN2, WakeUpNeo

      This is Brad Williams from NYSILC. A few things. First, the state didn't even know this figure. We had to FOIA for the results. Only OMH was transparent and had their figures online.

      It is for the settings that we defined and mostly FOIA'd and charted by county. Yes it does include correctional facilities, but prorated to 31% of population based on DOJ reports that state prison inmates have multiple disabilities (MH, learning, etc.). Other settings include DOH nursing homes, DOH assisted living, OPWDD developmental centers, OPWDD all other, OMH psychiatric, OHM all other. You can look up a county like Albany and get specific numbers for these settings that add up to a total of 3,686, Erie, 11,507, or Queens $20,285. Total statewide is 220,277.

      Governor recently signed an executive order related to Olmstead. MISCC needs to get active. It raises many other things related to quality of life and how it is far more cost effective to live in the community. But we also talked about how knowing this information is important for emergency preparedness and evacuation and what about voting? These are American citizens. Are they registered to vote? Were they afforded the opportunity to vote? So many issues.

  •  Having a disability in NYC is especially tough (3+ / 0-)
    Recommended by:
    WakeUpNeo, OLinda, KelleyRN2

    So many apartment buildings, stores, and subway stations are not accessible, elevator buildings cost a fortune, and even at the subway stations that are theoretically accessible it can be difficult to find the elevator or ramp. Thankfully I only need accessibility when I have a rolling suitcase...I can't imagine what it would be like to be in a wheelchair and need it all the time.

  •  money (1+ / 0-)
    Recommended by:

    I am speaking from no practical experience (yet), but it's just a feeling I have that if a person with a disability goes through a service for people with disabilities to find a job, for example, if SSDI provides that, or through a program at your state unemployment office for people with disabilities, you will be paid less. Employers sign up to help with these programs knowing they can pay less. And, it puts you in the position of signing up or applying as a person with a disability, when perhaps, depending on your disability, it should not matter.

    If you can possibly apply on your own, you will be paid more (I think). I know that would be difficult in some cases, but if you can do it on your own, maybe worth a try.

  •  This may surprise you (6+ / 0-)

    If a working adult becomes totally disabled by Social Security's definition, you become entitled to monthly Social Security Disability Insurance payments - but you have to wait 6 months before your first payment.  You also become eligible for Medicare - but you have to wait 24 months after you first receive an SSDI payment to get Medicare.  So a totally disabled person who has no hope to ever be able to work again and (due to their disability) may have enormous medical issues to deal with, has to wait 30 months from when they became disabled to get Medicare.  I wonder how many people are financially ruined before they make it 30 months?  I wonder how many are dead?

    Single Payer Single Payer Single Payer Single Payer Single Payer Single Payer Single Payer

    by CalbraithRodgers on Sun Dec 02, 2012 at 05:41:08 PM PST

  •  How do we define "disability"? Now? (1+ / 0-)
    Recommended by:

    Versus in 1950...or 1970...or 1990?

    Now THAT would be an eye opening diary.

    Oregon:'s cold. But it's a damp cold.

    by Keith930 on Sun Dec 02, 2012 at 05:45:55 PM PST

  •  Some additional details from within the report: (0+ / 0-)
    • Total population:  There are over 2 million New Yorkers with disabilities living in the community out of a total of more than 19 million residents (11%). This does not account for institutionalized individuals or active military personnel.

    • Veterans: There are 928,961 civilian veterans age 18 or older living in the community in New York State, and 232,805 (25.1%) of these individuals have a disability - a high incidence of disability compared to the general population.


    The following are (among) the recommendations that come from this needs assessment:


    2) Increase resources for the following most underserved populations most in need of IL services:

    •    Male veterans with disabilities
    •    Female veterans with disabilities
    •    Rural residents with disabilities
    •    Homeless individuals with disabilities
    •    Young adults with disabilities
    •    Immigrants with disabilities
    •    Hispanic/Latinos and Asians with disabilities
    •    Institutionalized individuals with disabilities.

    For a few of these underserved groups, this is the second consecutive SPIL cycle that they have been identified. As a result, their persistent need has to be recognized:

    •    Veterans with disabilities
    •    Homeless individuals with disabilities
    •    Young adults with disabilities
    •    Hispanic/Latinos and Asians with disabilities.


    So much for any illusion that Veterans are getting their needs met by the VA?

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